Tuesday, August 25, 2009

Day 29: Our "Most Uncomplicated Patient"

AJ's bone marrow biopsy went very well today. We will not have results until Friday, but were encouraged with his blood results that are continuing to rise. His platelet count was 214,ooo!!!! While platelet count is not the only important number, it continues to be on the forefront with us because it was the first number to begin to decline (as early as when AJ was 3). To see it at such high numbers and within the "normal" range it just amazing to us. God is good! Dr. Frangoul even remarked today that AJ is "our most uncomplicated patient." Again, very encouraging words from a doctor who deals with this daily.

We have a very special thank you to send to Lt. Jorge Cardoso, the Palm Beach County Fire Fighters, and the staff at St. Mary's Hospital who sent AJ a wonderful group of photo messages. Jorge is a friend from high school, who has gone out of his way to send AJ messages of encouragement throughout this entire process, and calls AJ "his hero," which makes AJ smile from ear-to-ear every time he hears it. Jorge is among so many of you who having given us unwavering support - we love all of you!



While we were in the hospital, we had the pleasure of meeting so many wonderful families who are struggling with the horrible diseases that their children are facing. Every little face warms your heart, while every story breaks it. Our hearts and prayers are with these families every single day. One of those sweet little ones in Lyric Frizzell, a 10 month old just diagnosed with leukemia. She is absolutely precious, as are her parents. Please say a prayer for Lyric and her parents as they face this long battle.

On a lighter note, here is our hat of the day:

Lots of love,
Cindy

10 comments:

Anonymous said...

AJ,
Wow! That is absolutely wonderful news to wake up to!! What a true fighter you are!!
There is not a day that goes by that I do not think of you and wish you were walking through the library doors. It is something to look forward to!!

With lots of love and prayers,
Mrs. Illg

Ms. Jackie said...

AJ,

I continue to be inspired by you and your family. You guys are so strong! We are thrilled that the news remains positive, as does your sunny outlook.

You will hear from Anna soon. She asks for blog updates everyday as soon as she gets home from school.

Love,
Ms. Jackie

Anonymous said...

Aj, ask grammy if her chicken needs to be feed. It should have been black with a white strip like a skunk. She will tell you the story. Gary

Kaufmann said...

This is amazing news. You are such a good example to others who are facing hard times and to everyone else in general. You're cool dude.
Tatum

Anonymous said...

Keep getting better little man. pretty soon you will be back in school studying and playing with all your friends. I will send you more pictures as soon as i can. you are the best and very amazing, do not ever forget that.

just a couple of weeks left before the big game. are you, mommy, daddy and your brothers getting ready. GO U.


Lt. Jorge Cardoso
Palm Beach County Fire Rescue
house of pain station 36

Anna said...

AJ,

I love your model of the Space Needle. It is really cool. It must have taken a long time to build it. I am impressed.
Love,
Anna

Denise said...

Way to go, Superman! Being an "uncomplicated patient" is terrific - it's like a plane flight being "uneventful"...THE BEST OUTCOME POSSIBLE!!!! Coach Bobby and I are still keeping an eye on you and praying for you. Love the pictures of your smiling face (and great hats). I'm looking forward to having your help in the dugout this spring with Austin & Ryan's baseball team.

Denise Lehman

Anonymous said...

AJ,
You continue to amaze all of us with your charming smile and positive attitude. God IS good! I continue to pray for you and your family. You have all been an example to us. Hang in there, you will be back in Madison soon!
Jack is just so grown-up this year in the Three-year-old class. It amazes me everytime I walk by his room and see him so busy with all the activities of the day.
Love to all of you, Ms. Pam

The McArthurs said...

Awesome news, AJ!

Sounds like you've become a mean, lean, platelet producing machine. Stay strong, keep smiling and make the most of every day. You are indeed a hero and an inspiration! We will keep cheering and praying for you.

Love,

Ben Sam Lily Freddie & Addy McArthur

Mrs. Parker said...

AJ,
You continue to amaze me!! Your title as "Most Uncomplicated Patient" is wonderful news and it makes me smile! :) I miss you and look forward to you coming home. Keep sharing your hats with us and let me know if there is anything you want me to send you.
Much love,
Mrs. Parker