Yesterday AJ had a great checkup at Vanderbilt. Dr. Frangoul said we are cruising right along. His blood results were normal across the board - did you hear that - NORMAL!!!!! We are so excited. His next appointment is July 13th, which will be his one year checkup (even though that is about two weeks shy of the actual date). They will run a complete battery of tests to compare with pre-transplant tests, as well as bloodwork to determine the composition of his marrow (percentage of donor marrow). It is the final step in this journey and our nightmare will be over.
And then we PARTY!!!!! AJPalooza will be July 31st. This will be a celebration of AJ's recovery, of our family's strength, and of our gratitude to all the friends and family who supported us along the way. More information to come....stay tuned!
We have been blessed with meeting another family who unfortunately is also enduring this nightmare of aplastic anemia. We are happy to say Nick is one week post-transplant and doing well. We were able to meet his wonderful mother this weekend and have been trying to share our experiences with her. It is our chance to pay forward the love and support we were given this past year. Please keep Nick and his entire family in your prayers.
On a happy note...AJ is getting back to most normal activities. We have been out to eat a few times, to the movies, swimming at a friend's house, and even had a day trip to Nashville with Grandma and PopPop- just for fun, no doctors!!! AJ and his brothers are taking swim lessons, going to SciQuest day camp next week, and looking forward to a beach trip in a few weeks. Sunscreen is still our BEST friend and we are still monitoring him closely, but return to more normal outings has been good for all of us.
As always, God is Good! And we love all of you!
Cindy and AJ
4 comments:
What a great update! I'm so thankful for normal test results and a return to a more "normal" life for AJ. Can't wait to party w/ you guys on the 31st!!!!
Wonderful! Normal is such a beautiful thing.
Enjoy the summer and we hope to see you soon!
Love,
Anna, Carly, Jackie * Mike
Wonderful news!! It sounds like you guys are having a really fun summer. Enjoy yourselves and I'll sook forward to seeing you soon.
Love you AJ!!
Mrs. Parker
Wow! What a GLOWING report on AJ's health and fun summer activities! All the best to you all as life returns to normal for AJ... You're always in our thoughts and prayers. Hugs to you, AJ, and to your parents, too!
Love,
Mary Jo & David
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